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Post by marshallco on Jan 30, 2023 21:29:42 GMT -5
Prayers for you and your wife Onebentarrow.
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Post by onebentarrow on Mar 9, 2023 9:27:07 GMT -5
Another update. Things are not going as planned. She is in the hospital again her heart rate went on a Rollercoaster ride up to 200+ then down to 80 then back up over and over again. Also blood count is low even tho kemo has been on hold sence Dec 28th. They think bloodcount is down because of antibiotics she is taken to fight the numonia and blood infection from the port being infected. The infectious disease DR stated last week that the kind of numonia she had was the worst he has seen in his practice. The good part is it is improving. Normally it is gone in 6 weeks or less but he is going on 9 weeks but improveing.when we get the blood count up and infection is gone she will have pictures taken and they are going to start from scratch to evaluate what to do with kemo sence it will be 14 weeks from last treatment.
Are we having fun yet?
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Post by Woody Williams on Mar 9, 2023 9:39:50 GMT -5
You all are still in my daily prayers....
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Post by treetop on Mar 9, 2023 10:35:30 GMT -5
Praying for you and your wife
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Post by deadeer on Mar 9, 2023 12:18:15 GMT -5
Just gotta keep fighting and stay positive.
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Post by omegahunter on Mar 9, 2023 14:26:48 GMT -5
Another update. Things are not going as planned. She is in the hospital again her heart rate went on a Rollercoaster ride up to 200+ then down to 80 then back up over and over again. Also blood count is low even tho kemo has been on hold sence Dec 28th. They think bloodcount is down because of antibiotics she is taken to fight the numonia and blood infection from the port being infected. The infectious disease DR stated last week that the kind of numonia she had was the worst he has seen in his practice. The good part is it is improving. Normally it is gone in 6 weeks or less but he is going on 9 weeks but improveing.when we get the blood count up and infection is gone she will have pictures taken and they are going to start from scratch to evaluate what to do with kemo sence it will be 14 weeks from last treatment. Are we having fun yet? Between leukemia and the brain cancer treatments, Tammy's blood labs were down several times. Her oncologist got her on monthly IVIG infusions until her labs stabilized. You might ask about that if her labs are perpetually bad.
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Post by onebentarrow on Mar 14, 2023 21:53:26 GMT -5
Got some goodish news today. The numonia is still shrinking but she needs to get off of the antibiotic she is on because it can cause blood numbers to fall with long term use. They are getting insurance clearance for different one now. They have decided sence she has not had a kemo treatment sence Dec 14 they are going to reevaluate and see what is the best options for us. From the conversations I have had with the cancer Institute it appears they are going to recommend surgery with no kemo. Partly because the kemo is extremely hard on her with side effects(uncontrollable nausea, direa,blood numbers dropping,weakness among the worst). She may have to have some kind of kemo after surgery but that decision is in the future. Nothing is set in stone. This is just what has been implied from my conversations I missed an update. She was in the hospital last week for 5 days again. Blood numbers dropped and was severe enimic. They gave her 4 units of blood along with other stuff. Been kind of hectic keeping up with drs and informing family I just missed you all
Onebentarrow
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Post by treetop on Mar 15, 2023 7:10:10 GMT -5
Glad to hear something’s are going your way will keep you in my prayers
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Post by Mack Apiary Bees on Mar 16, 2023 8:17:53 GMT -5
Prayers and glad some better news. God Bless this tying time.
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Post by onebentarrow on Mar 21, 2023 7:45:32 GMT -5
Things went south again. Had antibodies infusion with blood draw yesterday morning. Got a call yesterday afternoon that potassium was critically low. To make a long story short was on phone off and on for 3 hrs getting prescription to CVS befor it closed. Made a mad dash at 730 to get prescription. They closed at 8. During phone conversations one nurse with critical nurse back ground stated if it was her she would admit and give potassium infusion. For any one that knows her number was 2.8. Also found out that if they cannot get numbers up by Friday they will NOT be able to to a scope procedure required by surgery Dr. Hoping for the best but planning for the worst. The ironery of the situation is that all the bad stuff has originated from kemo in one way ot another and from pictures they took it did absolutely NOTHING with the cancer.matter of fact the tumor accully increased in size
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Post by Mack Apiary Bees on Mar 21, 2023 8:32:09 GMT -5
That's not good reading at all. Prayers that it turns around fast.
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Post by Huntnfreak on Mar 21, 2023 9:57:09 GMT -5
Prayers for her numbers to improve!! 🙏🏻🙏🏻
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Post by genesis273 on Mar 22, 2023 6:10:10 GMT -5
So sorry to read this. Continued prayers!
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Post by treetop on Mar 22, 2023 11:58:07 GMT -5
Sorry to hear that you and your wife will be in my prayers.
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Post by Woody Williams on Mar 22, 2023 12:18:11 GMT -5
You all are still in my daily prayers…,
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Post by schall53 on Mar 23, 2023 7:31:41 GMT -5
Praying for her.
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Post by onebentarrow on Mar 29, 2023 11:05:51 GMT -5
Gona post a copy of a text I sent my sister so you know what is going on in our life. This is not for sympathy or a pat on the back it is to show what goes on behind the seen with some of these illnesses. I new it was a pain but had no idea the amount of Hassel or frustrations associated with it.
Ok. Sit down. This is gona be long. May have to do it in 2 texts. Been a long day. Just got home. Got to hospital 1 hr early. Easy drive from Doug's. Got wrong directions in hospital 3 times and went to wrong place 3 times. Finally got to correct place. And got pet scan took about 1 hr then to pre surgery check in saw 9,000 people there. 1st was checkin nurse for 15 min of questions we answered at first check in. Then They took 15 viles of blood for labs, then instructions on procedures for prep surgery. Got protien stuff to drink for 4 days and bunch of fluids too then Dr came in because it was 12 15 and we were suposto see him in his office at 11:40 with explanation of what he was going to do. It is cleare that they are 100% going to take all of her stomach out. He left then finished conversation about preserver. Then Dr came back in and stated that he had just been with guy that reads the pet scan and they see a mass in her lung and want a biopsy befor they do surgery to see if surgery is nessasary. After that we co to another office and get checked in with same ### 9100 questions we just answered in other two offices. Then post dietitian came in to explain about diet and recovery and a time line of how long befor she will be able to eat solid foods then stated that because of surgery she will have to take 4 different vitamins every day for the rest of her life then Dr nurse came in with details and dates for surgery if it is not canceled because of lungs. Plus some other stuff. Wile all this was going on I was on the phone with Tina's HR lady about tina being relieved to return to work yesterday and on phone with Parkview about same. Finally found out some one some where can not read dated and she has not been relieved to return to work. Then I had calls about who took tina off of 2 of her meds. Blood pressure and sugar. Stating they thought she should be taking them. Left hospital around1:30. Went to parking garage got car went to leave (your have to pay to Park) and my credit card would not work and they would not except cash but an attendant in garage let me out for free. Got luckey there. I only have one card so now I got to find out why card won't work. Left headed north and got a call. From Parkview that they want Tina to start taking the 2 meds again. Now I got to get ahold of someone to let indy know to see if I have to hold them befor surgery. We all ready told them all meds she was takeing. I all ready have one to hold 3 days befor and 3 the day of. We have to be at hospital at 5:45 am for surgery at 8 and have to drink 20 os of stuff by 4:30 am day of and take shower with special soap morning of and night befor. I know I am forgetting some stuff but I have a book of paper work to go thru and get a time-line written down so we donot forget anything plusses I got to get biopsy scheduled so findings are available prior to surgery. Also donot figure biopsy is needed because pre pet scan befor this started showed NOTHING in the lung and infectus disease DR stated that she may have scaring in that lung from numonia that will never go away per last CT scans of chest 2 weeks ago. Been a itch of a day Got a good one for you. Figured out why my card would not work in the parking garage. It expired on 2 -23 Da I had the new one in my billfold but forgot about it and had not activated it yet. Da! So old one in trash- new one activated and in billfold where old one used to be. Problem solved I been on phone cence 8:30 getting info and things figured out from yesterday. Do have motels room rented for 16 and got Tina's meds figured out and home nurse gona bring a list of what she IS suposto be taking Friday so I can double check to make sure. Got wheels turning on biopsy for appt to get that dune. Still need to call indy and inform about new meds for Tina and get time line written down. Also got a list started of to doos and things needed in phone so I donot forget. That is my last 24/ 36 hrs. The drive down was 3 hrs. We did stay at a cousins just south of hospital about 30 min the night befor so we did not have to be on the road at 3am to be on time. Got to visit and has a good time This was one of the worst days in a while but they have not been uncommon thru out this ordeal.
Onebentarrow
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Post by deadeer on Mar 29, 2023 11:16:50 GMT -5
Dang brother. It's all in the good name of your loved one, so just hold the course.
Same thing happened to my card this year too.
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Post by whitetaildave24 on Mar 29, 2023 11:24:36 GMT -5
Just hang in there and be the best provider you can. You certainly have a lot going on.
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Post by marshallco on Mar 29, 2023 21:32:31 GMT -5
God bless you Onebentarrow. You are a good husband.
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